Director of Strategic Partnerships and Business Development

About Amyloidosis Research Consortium The Amyloidosis Research Consortium (ARC) is a 501c(3) nonprofit organization founded in 2015, harnessing the power of collaboration and innovation to advance science and both improve and extend the lives of those with Amyloidosis. We are dedicated to transforming the way research is being done and focus on what will have the most significant impact on improving the lives of amyloidosis patients. We forge collaborations across industry, research, clinical care, and regulatory to address unmet needs and accelerate the discovery of new treatments. ARC empowers and supports patients by ensuring they have access to the best quality care and information. To learn more about ARC, visit About the Position ARC is actively seeking a Director of Strategic Partnerships and Business Development to lead and expand our funding efforts through the development of strategic partnerships with pharmaceutical and biotech companies. This pivotal role is responsible for identifying and cultivating key industry relationships, securing sponsorships, and obtaining grant funding essential for advancing care and research for amyloidosis patients. Reporting directly to the CEO, the Director of Strategic Partnerships and Business Development will contribute significantly to ARC’s annual and strategic plans and support the growth of our patient support and research programs. The Director will be instrumental in building and strengthening these industry connections, fostering a collaborative culture that identifies opportunities to drive progress and innovation in the field. This role is also central to the ASPIRE Industry Collaborative—a collective of leading life sciences companies convened by ARC in a pre - competitive space. ASPIRE’s mission is to leverage these partnerships to accelerate advancements in amyloidosis diagnosis, treatment, and health equity. The ideal candidate will have expertise in partnership management, strategic planning, and fundraising, combined with a deep understanding of the pharmaceutical and biotech sectors. Responsibilities Business Partnership and Relationship Management:

• Cultivate collaborative relationships with life science companies involved in amyloidosis research as the primary ARC contact.
• Develop and implement strategies to expand engagement, strengthen partnerships, and identify growth opportunities in amyloidosis research and therapeutic development; champion strategic initiatives aligned with ARC's mission and partners' objectives, prioritizing patient needs and promoting awareness across teams.
• Contribute to program development, set goals and objectives for partnership initiatives, and be responsible for raising funds to support these initiatives in alignment with ARC's mission and organizational priorities.
• Accountable for achieving all revenue targets and associated operational metrics.
• Monitor partnership metrics, fundraising outcomes, and financial performance, providing regular reports to support informed decision-making.
• Oversee the planning, execution, and management of life science company funded grant and sponsorship proposals, applications, and reporting, ensuring all requirements are met.

ASPIRE Program Leadership:

• Provide strategic direction and oversight for the ASPIRE Industry Collaborative program.
• Lead Executive Steering Committee comprised of ASPIRE committee members and key stakeholders, with goal of identifying and prioritizing ASPIRE’s strategic near and long- term goals and ensuring alignment with ARC's overarching objectives for ASPIRE.
• Oversee ASPIRE programs and initiatives implemented in partnership with ASPIRE working group members and vendors, including issue resolution, strategic decision- making, and optimizing resource allocation to ensure successful outcomes.
• Provide strategic guidance on achievable, tactical deliverables such as publication plans, focus groups, and knowledge-sharing activities to enhance ASPIRE’s impact and outreach.
• Management and oversight of the ASPIRE Senior Program Manager’s role, including project planning, budgeting, and execution to maintain momentum and ensure successful completion.
• Foster visibility of ASPIRE's plans and activities, promoting transparency and alignment with organizational priorities.

Skills and Experience

• Bachelor’s Degree with 10+ years, or a Master's degree with 7+ years of proven experience in partnership management, strategic planning, and fundraising within the pharmaceutical or healthcare sector.
• Strong leadership abilities with a demonstrated capacity to foster collaboration, drive innovation, and achieve results.
• Exceptional communication and interpersonal skills, with proven negotiation abilities to effectively influence stakeholders and mobilize teams toward shared objectives.
• In-depth understanding of the pharmaceutical and biotech landscape, including the regulatory environment and rare disease research, is highly desirable.
• Proven experience in managing and mentoring direct reports, fostering a collaborative and productive team environment.
• Ability to professionally represent the organization in written and verbal formats.
• Ability to work effectively in a collaborative, multidisciplinary environment.
• Passion for non-profits, health equity, patient engagement, and cross-sector collaboration.
• Ability to be flexible, compassionate, and creative, while maintaining a sense of humor.
• Experience utilizing MS Office, Salesforce, project management tools such as Wrike, Smartsheet, or Microsoft Project, and document management systems such as Box.

This is an exciting opportunity to work at a growing organization, with a team that values a diversity of experience and demonstrates an unwavering commitment to the amyloidosis community. Equal Employment Opportunity We are proud to be an equal opportunity employer – and celebrate our employees’ differences, regardless of race, color, religion, gender, sexual orientation, gender identity, national origin, age, disability, or Veteran status. Additional Information Remote Work Opportunity - Work Schedule & Expectations:

• Seize a fully remote experience with this dynamic full-time, exempt position requiring 40 hours per week.
• Embrace the flexibility of working from the comfort of your home, Monday to Friday, 9 am to 5 pm Eastern Time, fostering seamless collaboration with the rest of the team.
• Anticipate occasional travel for exciting events and meetings, adding a dynamic element to your remote work journey.

Comprehensive Benefits Package : At ARC, we prioritize the well-being and work-life balance of our team members, offering a comprehensive benefits package designed to support our employees’ overall health and future goals. Here's what our package includes:

• Paid Time Off : Enjoy a generous package, featuring 4 weeks of vacation time, 40 hours of sick leave, 10 holidays, and 1 floating holiday. Plus, enjoy the PTO Free Days during the extended holiday break from Christmas to New Year’s Day.
• Medical/Dental/Vision: Access a range of contributory medical, dental, and vision plans from your start date, with no waiting period for new hires. Benefit from a substantial 65% employer contribution towards both individual and family medical and dental insurance plans.
• Life/Disability: Rest easy with our 100% employer-paid Life and AD&D plan, as well as Short-term and Long-term Disability coverage.
• Flexible Spending Accounts (FSA): Choose from Health FSA and Dependent Care FSA options.
• 401(k) Retirement Plan: Plan for your future with our up to 4% employer match on the 401(k) retirement plan.
• Additional Benefits: Explore other offerings, including the Employee Assistance Program (EAP), Worker's Compensation, and more.

The pay range for this role is: 135,000 - 145,000 USD per year(Remote)

PI253684185